Patience for Grace

Thursday, March 7, 2013

A Voice for Grace

Watch out world! Grace is going to get a voice of her own real soon.
I have been attending a workshop about PODD (Pragmatic Organisation Dynamic Display) with instructor Linda Burkhart. I have no doubt that this is the language Grace will learn to use and become a functional communicator: talking to whom she wants, when she wants, wherever she wants. The PODD is not another "system" for Grace but a language that will become meaningful for her to use to communicate. She will be able to communicate with PODD with the help of a smart-partner, which I hope becomes all her friends, teachers, therapists and family.
This workshop has flown by, I have only one more day, left. We are in class, 8 hours each day and I just can't get enough information. I am filled with an energy of awe, admiration, promise, inspiration, empowerment and certainity. I hold a strong belief that Grace will take to PODD and we are going to learn a lot more about a very lovely young girl. I just know it!

Thursday, February 7, 2013

Grace's Wish

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Wednesday, January 30, 2013

Foil Ribbon

Like any kid, you give them fancy, expensive toys and what becomes their favorite toy- the box or the packaging or in Grace's case, a piece of the shiny, crinkly foil ribbon that once wrapped a gift, long ago.

Tuesday, January 15, 2013

Back up Photos

How many times do I tell myself, I need to back up photos. We have lost several years of digital photos in the past. You would think I would learn. But, no. Once again, I lost some recent photos of Grace that I really wanted to post. I was trying to save them and move them into categories but managed to delete them the other night, late the other night. Bummer. Note to self- don't move photos around late at night. The photos are of Grace swimming. One of these days, I will be able to show you our happy-happy Grace, swimming in her new hot tub from the Make-a-Wish Foundation. Grace now has year round access to a swimming pool. We are so excited for her! P.S. You may notice that I changed the name of Grace's Blog. It is still the same Grace you should know if you have signed up for the posts previously. Just thought you should be aware of the different blog name.